The Boy Whose Skin Fell Off

The Boy Whose Skin Fell Off (DVD) (*)

Out of Stock

Screened, competed or awarded at:
BAFTA Awards
Emmy Awards
Other Film Festival Awards

Language Selections:
English ( Dolby Digital 2.0 )

Product Origin/Format:
United Kingdom ( PAL/Region 2 )

Running Time:
49 min

Aspect Ratio:
Widescreen (1.78:1)

Special Features:
Interactive Menu
Photo Gallery
Scene Access

Movie filmed in 2004 and produced in:
United Kingdom ( Great Britain, Ireland )

Directed By:
Patrick Collerton

Written By:
Patrick Collerton

Actors:
Edna Kennedy ..... Herself
Jonny Kennedy ..... Himself
Nell McAndrew ..... Herself

Synopsis:

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Jonny Kennedy is a man with a lot to do. He's got just four months to move home, befriend Nell McAndrew, fly a plane, visit Downing Street and plan his own funeral. 36-year-old Jonny is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In 2003, Jonny decided to work with filmmaker Patrick Collerton to document his last months in an uplifting, confounding and provocatively humorous story of a singular man.

A passionate documentary about the life and struggles of a young man affected by the merciless skin condition called Dystrophic Epidermolysis Bullosa.

This product was added to our catalog on Thursday 27 May, 2010.